top of page

FDA Meeting - June of 2025

June 2025- I went down to Silver Springs, MD with Connie Lee, founder and CEO of Alliance to Cure Cavernous Malformation and Angela Glading, Chief Scientific Officer for the Alliance to Cure Cavernous Malformation. We met with the Devices division to discuss the beginning stages of a focused ultrasound trial to treat CCMs.  I spoke on behalf of the CCM community as a patient advocate.

CCM Cure Magazine, First Edition

Recovery After Stroke Podcast

Screenshot 2024-09-15 204257.png

Eloquent Documentary

A FILM CREATED BY MATTHEW BURNELL & THE ALLIANCE

eloquent.png

The Neuronerds Podcast

Brain Injury Alliance of AZ Book Chat

Screenshot 2023-02-28 140201.png

The Royal Caribbean Blog Podcast

RACHEL AND SISTER, REBECCA DISCUSS ALL THINGS CRUISING WITH MOBILITY NEEDS AND HELPFUL TIPS

unnamed (12).jpg

Surgeon Dr. Teresa O Explains Path to Facial Surgeries and Rachel's Case

Screenshot 2023-01-20 180557.png
309921468_1212136899377001_6515712798781014687_n-768x644.png

Thr Alliance Book Chat

Patient Advocacy Speaking Engagement at Ovid Therapeutics

Canvas Rebel Magazine Interview

660 AM "The Answer" Interview

660am.png
bottom of page